Quality of life for parents of children with type 1 diabetes
Archives of Advances in Biosciences,
Vol. 12 No. 4 (2021),
12 October 2021
,
Page 43-49
https://doi.org/10.22037/aab.v12i4.35477
Abstract
Introduction: Parents whose children suffer from diabetes face various issues and challenges, including reduced quality of life. On the other hand, they have an essential role in taking care of their diabetic children.
Material and method: This descriptive correlational study was conducted in 2020 in Jiroft, Iran, to evaluate the quality of life in 96 parents of children with type 1 diabetes. The sampling method in this study was census and the study population was parents with a child suffering from type 1 diabetes. Research tools included Demographic Information Checklist and Health-related quality of life Questionnaire (SF36). SPSS 19 software was used for data analysis. Descriptive statistics was used as frequency tables, and indicators such as mean and standard deviation described the demographic characteristics and the quality of life. Pearson correlation coefficient test was deployed to assess the quality of life. Independent chi-square and t-test were used to relate this variable to demographic characteristics.
Results: There is a significant difference between life satisfaction, parental boredom, feeling of well-being, sufficient income, general health status, and being covered by supportive institutions of parents of type 1 diabetic children with the quality of life (p-value <0.05).
Conclusion: By knowing this group of parents' living conditions and implementing programs to support these families, the quality of life of parents with a diabetic child can be improved.
- Child, Parents, Quality of life, Type 1 diabetes
How to Cite
References
Tamayo T, Rosenbauer J, Wild SH, Spijkerman AMW, Baan C, Forouhi NG, et al. Diabetes in Europe: An update. Diabetes Res Clin Pract. 2014; 103(2):206-17. [DOI:10.1016/j.diabres.2013.11.007] [PMID]
Andrade FCD. Measuring the impact of diabetes on life expectancy and disability-free life expectancy among older adults in Mexico. J Gerontol B. 2010; 65B(3):381-9. [DOI:10.1093/geronb/gbp119] [PMID] [PMCID]
Parhofer KG. Interaction between glucose and lipid metabolism: More than diabetic dyslipidemia. Diabetes Metab J. 2015; 39(5):353-62. [DOI:10.4093/dmj.2015.39.5.353] [PMID] [PMCID]
Rowley WR, Bezold C. Creating public awareness: State 2025 diabetes forecasts. Popul Health Manag. 2012; 15(4):194-200. [DOI:10.1089/pop.2011.0053] [PMID]
Esteghamati AR, Larijani B, Haji Aghajani M, Ghaemi F, Kermanchi J, Shahrami A, et al. Diabetes in Iran: Prospective analysis from first nationwide diabetes report of National Program for Prevention and Control of Diabetes (NPPCD-2016). Sci Rep. 2017; 7:13461. [DOI:10.1038/s41598-017-13379-z] [PMID] [PMCID]
Tuomilehto J. The emerging global epidemic of type 1 diabetes. Curr Diab Rep. 2013; 13(6):795-804. [DOI:10.1007/s11892-013-0433-5] [PMID]
Ma RCW, Chan JCN. Incidence of childhood type 1 diabetes: A worrying trend. Nat Rev Endocrinol. 2009; 5(10):529-30. [DOI:10.1038/nrendo.2009.180] [PMID]
Ji J, Chen T, Sundquist J, Sundquist K. Type 1 diabetes in parents and risk of attention deficit/hyperactivity disorder in offspring: A population-based study in Sweden. Diabetes Care. 2018; 41(4):770-4. [DOI:10.2337/dc17-0592] [PMID]
Whittemore R, Jaser S, Chao A, Jang M, Grey M. Psychological experience of parents of children with type 1 diabetes: A systematic mixed-studies review. Diabetes Educ. 2012; 38(4):562-79. [DOI:10.1177/0145721712445216] [PMID] [PMCID]
Williams LB, Laffel LMB, Hood KK. Diabetes‐specific family conflict and psychological distress in paediatric type 1 diabetes. Diabet Med. 2009; 26(9):908-14. [DOI:10.1111/j.1464-5491.2009.02794.x] [PMID] [PMCID]
Kalyva E, Malakonaki E, Eiser Ch, Mamoulakis D. Health‐related Quality of Life (HRQoL) of children with Type 1 Diabetes Mellitus (T1DM): Self and parental perceptions. Pediatr Diabetes. 2011; 12(1):34-40. [DOI:10.1111/j.1399-5448.2010.00653.x] [PMID]
Butwicka A, Fendler W, Zalepa A, Szadkowska A, Zawodniak-Szalapska M, Gmitrowicz A, et al. Psychiatric disorders and health-related quality of life in children with type 1 diabetes mellitus. Psychosomatics. 2016; 57(2):185-93. [DOI:10.1016/j.psym.2015.11.001] [PMID]
Lins L, Carvalho FM. SF-36 total score as a single measure of health-related quality of life: Scoping review. SAGE Open Med. 2016; 4. [DOI:10.1177/2050312116671725] [PMID] [PMCID]
Zhu Y, Wang Q, Pang G, Lin L, Origasa H, Wang Y, et al. Association between body mass index and health-related quality of life: The “obesity paradox” in 21,218 adults of the Chinese general population. PloS One. 2015; 10(6):e0130613. [DOI:10.1371/journal.pone.0130613] [PMID] [PMCID]
Montazeri A, Goshtasebi A, Vahdaninia M, Gandek B. The Short Form health survey (SF-36): Translation and validation study of the Iranian version. Qual Life Res. 2005; 14(3):875-82. [DOI:10.1007/s11136-004-1014-5] [PMID]
Sullivan-Bolyai S, Deatrick J, Gruppuso P, Tamborlane W, Grey M. Constant vigilance: Mothers’ work parenting young children with type 1 diabetes. J Pediatr Nurs. 2003; 18(1):21-9. [DOI:10.1053/jpdn.2003.4] [PMID]
American Diabetes Association. Standards of medical care in diabetes - 2010. Diabetes Care. 2010; 33(Suppl 1):S11-61. [DOI:10.2337/dc10-S011] [PMID] [PMCID]
Cameron FJ, Northam EA, Ambler GR, Daneman D. Routine psychological screening in youth with type 1 diabetes and their parents: A notion whose time has come? Diabetes Care. 2007; 30(10):2716-24. [DOI:10.2337/dc07-0603] [PMID]
Herbert LJ, Clary L, Owen V, Monaghan M, Alvarez V, Streisand R. Relations among school/daycare functioning, fear of hypoglycemia and quality of life in parents of young children with type 1 diabetes. J Clin Nurs. 2015; 24(9-10):1199-209. [DOI:10.1111/jocn.12658] [PMID]
Inverso H, Moore HR, Morrow T, Jaser SS, Streisand R. 906-P: Parents experience diabetes distress too: Parental reports and association with quality of life and teen A1C. Diabetes. 2021; 70(Suppl 1):906-P. [DOI:10.2337/db21-906-P]
Herbert LJ, Monaghan M, Cogen F, Streisand R. The impact of parents’ sleep quality and hypoglycemia worry on diabetes self-efficacy. Behav Sleep Med. 2015; 13(4):308-23. [DOI:10.1080/15402002.2014.898303] [PMID] [PMCID]
Goldney RD, Phillips PJ, Fisher LJ, Wilson DH. Diabetes, depression, and quality of life: A population study. Diabetes Care. 2004; 27(5):1066-70. [DOI:10.2337/diacare.27.5.1066] [PMID]
Moreira H, Frontini R, Bullinger M, Canavarro MC. Family cohesion and health-related quality of life of children with type 1 diabetes: The mediating role of parental adjustment. J Child Fam Stud. 2014; 23(2):347-59. [DOI:10.1007/s10826-013-9758-6]
Streisand R, Mackey ER, Herge W. Associations of parent coping, stress, and well-being in mothers of children with diabetes: Examination of data from a national sample. Matern Child Health J. 2010; 14(4):612-7. [DOI:10.1007/s10995-009-0497-7] [PMID]
Rumburg TM, Lord JH, Savin KL, Jaser SS. Maternal diabetes distress is linked to maternal depressive symptoms and adolescents’ glycemic control. Pediatr Diabetes. 2017; 18(1):67-70. [DOI:10.1111/pedi.12350] [PMID] [PMCID]
Cunningham NR, Vesco AT, Dolan LM, Hood KK. From caregiver psychological distress to adolescent glycemic control: The mediating role of perceived burden around diabetes management. J Pediatr Psychol. 2011; 36(2):196-205. [DOI:10.1093/jpepsy/jsq071] [PMID] [PMCID]
Eckshtain D, Ellis DA, Kolmodin K, Naar-King S. The effects of parental depression and parenting practices on depressive symptoms and metabolic control in urban youth with insulin dependent diabetes. J Pediatr Psychol. 2010; 35(4):426-35. [DOI:10.1093/jpepsy/jsp068] [PMID] [PMCID]
Whittemore R, Urban AD, Tamboriane WV, Grey M. Quality of life in school-aged children with type 1 diabetes on intensive treatment and their parents. Diabetes Educ. 2003; 29(5):847-54. [DOI:10.1177/014572170302900514] [PMID]
Lewin AB, Heidgerken AD, Geffken GR, Williams LB, Storch EA, Gelfand KM, et al. The relation between family factors and metabolic control: The role of diabetes adherence. J Pediatr Psychol. 2006; 31(2):174-83. [DOI:10.1093/jpepsy/jsj004] [PMID]
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