Quality of Life in Children With Chronic Kidney Disease Using the Hindi Version of PedsQL 3.0 End-stage Renal Disease Module: Perspective of Patient and Caregiver Quality of Life in Chronic Kidney Disease
Journal of Pediatric Nephrology,
Vol. 11 No. 3 (2023),
16 October 2024
https://doi.org/10.22037/jpn.v11i3.44547
Abstract
Background and Aim: Limited data exists on health-related quality of life (HRQOL) in
children with chronic kidney disease (CKD) stage 5D and the results often differ. This study
assesses the HRQOL in children with CKD stage 5D using the Hindi version of the paediatric
quality of life (PedsQL) 3.0 end-stage renal disease module.
Methods: This was a cross-sectional, questionnaire-based study conducted between February
2018 and January 2019 at a tertiary-care center in New Delhi, India. HRQOL was assessed in
45 children (age=5-18 years) receiving maintenance dialysis for at least 2 months, using both
child self-report and parent-proxy report.
Results: Enrolled children had poor HRQOL, with the worst scores observed in the treatmentproblems
(TP) domain (child and parent-proxy report). Patients who were on hemodialysis
had lower quality of life (QOL) scores compared to subjects on peritoneal dialysis, especially
in the TP domain. We found a significant negative impact of adolescent age group (general
fatigue [GF], about-my-kidney-disease [AMKD], family and peer interaction [F/PI]), female
gender (perceived physical appearance [PPA]), rural residence (total, GF, AMKD), separated
parents (AMKD, worry), lower maternal education (GF, communication), higher number of
medication intake (AMKD, F/PI), low hemoglobin (communication) and more number of
hospitalizations in last six months (F/PI) on HRQOL of enrolled children. Furthermore, the
child-reported mean total scores in the domains of GF, TP, F/PI and worry were less favorable
compared to parent-reported scores. School attendance was seen in only 15 % of the children.
Conclusion: End-stage kidney disease exerts a significant impact on the HRQOL of affected
children; therefore, comprehensive management of this disease in children should include
QOL assessment.
- Dialysis
- Kidney failure
- Paediatric quality of life (PedsQL)
- Quality of life (QOL)
- Chronic kidney disease (CKD)
How to Cite
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