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International Journal of Medical Toxicology and Forensic Medicine

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  3. Vol. 10 No. 4 (2020): International Journal of Medical Toxicology and Forensic Medicine
  4. Original Article (Medical Ethics)

Vol. 10 No. 4 (2020)

November 2020

Attitudes of Patients and Their Families Towards Medical Privacy and Competence of Bearer or Receiver of Bad News

  • Maryam Zaare Nahandi
  • Mohammad Asghari Jafarabadi
  • Mehrnoosh Haghighatjou
  • Kosar Ashrafrezaei
  • Marziyeh Shakeri Saeedabad
  • Ahad Banagozar Mohammadi
  • Ali Banagozar Mohammadi

International Journal of Medical Toxicology and Forensic Medicine, Vol. 10 No. 4 (2020), 16 November 2020 , Page 28580
https://doi.org/10.32598/ijmtfm.v10i4.28580 Published: 12/12/2020

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Abstract

Background: Based on the patients’ and relatives’ views on the level of preservation of privacy rights of individuals, we propose a way to reduce problems and disagreements about the competence of the provider and recipient of bad news.
Methods: In the current cross-sectional study, the participants were recruited from the main northwest hospital of Iran. It was also conducted to study the scope of medical privacy and competence of bearers or receivers of bad news. After the literature review, two questionnaires were designed and administered. They contained items pertinent to the scope of medical privacy and competence of bearers and receivers of bad news. Each item of the original questionnaire was scored on a 5-point Likert scale.
Results: The model quality and significance level were obtained using KMO and Bartlett tests. The results (patient’s attitudes questionnaire: KMO=0729 and P<0.05 in the Bartlett test; family attitudes questionnaire: KMO=0.764 and P<0.05 in the Bartlett test) confirmed the model efficiency. According to the results from factor variance and their cumulative rate, the predictive power of the model was obtained as 62.019%, based on the overall factor variance rate. The majority of patients wanted to be informed about their disease conditions. They also considered bad news to be medical privacy and disagreed that their medical information should be opened up with others without permission.
Conclusion: To preserve medical privacy, it is recommended that a system be designed that allows patients at the admission to the medical center to enlist their eligible family members to whom medical information can be delivered.

Keywords:
  • Bad News
  • Privacy
  • Patient
  • Family
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How to Cite

Zaare Nahandi, M., Asghari Jafarabadi, M., Haghighatjou, M., Ashrafrezaei, K., Shakeri Saeedabad, M., Banagozar Mohammadi, A., & Banagozar Mohammadi, A. (2020). Attitudes of Patients and Their Families Towards Medical Privacy and Competence of Bearer or Receiver of Bad News. International Journal of Medical Toxicology and Forensic Medicine, 10(4), 28580. https://doi.org/10.32598/ijmtfm.v10i4.28580
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References

Asemani O, Ebrahimi S. Medical confidentiality. Iran J Med Ethic Hist Med. 2014; 6(6):64-76. http://ijme.tums.ac.ir/article-1-5276-en.html

Mahdavinejad G. Confidentiality in medical profession. Iran J Med Ethic Hist Med. 2008; 1(4):13-20. http://ijme.tums.ac.ir/article-1-295-en.html

Parsa M, Bagheri A, Larijani B. Telling bad news and its various aspects. Iran J Med Ethic Hist Med. 2011; 4(6):1-14. http://ijme.tums.ac.ir/article-1-145-en.html

Kazemi A, Pursoleimani A, Fakhari A, Madaen K. Truth telling in medicine: Views of Tabriz University of Medical Sciences. Iran J Med Ethic Hist Med. 2010; 3(2):54-63. http://ijme.tums.ac.ir/article-1-5028-en.html

Uprety D, Kasireddy V. Breaking bad news in cancer patients. SM J Commun Med. 2015; 1(1):1005. https://smjournals.com/community-medicine/fulltext/smcm-v1-1005.php

Pereira CR, Calônego MA, Lemonica L, Barros GA. The P-A-C-I-E-N-T-E Protocol: An instrument for breaking bad news adapted to the Brazilian medical reality. Rev Assoc Med Bras (1992). 2017; 63(1):43-9. [DOI:10.1590/1806-9282.63.01.43] [PMID]

Narayanan V, Bista B, Koshy C. 'Breaks' protocol for breaking bad news. Indian J Palliat Care. 2010; 16(2):61-5. [DOI:10.4103/0973-1075.68401] [PMID] [PMCID]

Baile WF, Buckman R, Lenzi R, Glober G, Beale EA, Kudelka AP. Spikes-A six-step protocol for delivering bad news: application to the patient with cancer. Oncologist. 2000; 5(4):302-11. [DOI:10.1634/theoncologist.5-4-302] [PMID]

Kaplan M. SPIKES: A framework for breaking bad news to patients with cancer. Clinical journal of oncology nursing. 2010; 14(4):514-6. [DOI:10.1188/10.CJON.514-516] [PMID]

Farokhyar N, Shirazi M, Bahador H, Baradaran HR, Jahanshir A. Assessing the validity and reliability of spikes questionnaires regard in of medical residents awareness breaking bad news in TUMS 2012. Razi J Med Sci. 2014; 21(122):29-36. http://rjms.iums.ac.ir/article-1-3285-en.html

Garrett TM. Health care ethics: Principles and problems. New York City: Pearson; 2009. https://www.pearson.com/us/higher-education/product/Garrett-Health-Care-Ethics-Principles-and-Problems-5th-Edition/9780132187909.html

Lo B. Resolving ethical dilemmas: A guide for clinicians. Philadelphia: Lippincott Williams & Wilkins; 2012. https://www.ovid.com/product-details.12535.html

Mavroforou A, Giannoukas AD, Mavrophoros D, Michalodimitrakis E. Confidentiality governing surgical research practice. World J Surg. 2005; 29(2):122-3. [DOI:10.1007/s00268-004-7678-8] [PMID]

Bumb M, Keefe J, Miller L, Overcash J. Breaking bad news: An evidence-based review of communication models for oncology nurses. Clin J Oncol Nurs. 2017; 21(5):573-80. [DOI:10.1188/17.CJON.573-580] [PMID]

Karimi Rozveh A, Nabi Amjad R, Karimi Rozveh J, Rasouli D. Attitudes toward telling the truth to cancer patients in Iran: A review article. Int J Hematol Oncol Stem Cell Res. 2017; 11(3):178-84. [PMID] [PMCID]

de Pentheny O'Kelly C, Urch C, Brown EA. The impact of culture and religion on truth telling at the end of life. Nephrol Dial Transplant. 2011; 26(12):3838-42. [DOI:10.1093/ndt/gfr630] [PMID]

Surbone A, Ritossa C, Spagnolo AG. Evolution of truth-telling attitudes and practices in Italy. Crit Rev Oncol Hematol. 2004; 52(3):165-72. [DOI:10.1016/j.critrevonc.2004.09.002] [PMID]

Gold M. Is honesty always the best policy? Ethical aspects of truth telling. Intern Med J. 2004; 34(9-10):578-80. [DOI:10.1111/j.1445-5994.2004.00673.x] [PMID]

Hébert PC, Hoffmaster B, Glass KC, Singer PA. Bioethics for clinicians: 7. Truth telling. CMAJ. 1997; 156(2):225-8. [PMID] [PMCID]

Fujimori M, Akechi T, Uchitomi Y. Factors associated with patient preferences for communication of bad news.Palliat Support Care. 2017; 15(3):328-35. [DOI:10.1017/S147895151600078X] [PMID]

Fainsinger RL, Núñez-Olarte JM, Demoissac DM. The cultural differences in perceived value of disclosure and cognition: Spain and Canada. J Palliat Care. 2003; 19(1):43-8. [DOI:10.1177/082585970301900108] [PMID]

Hancock K, Clayton JM, Parker SM, Wal der S, Butow PN, Carrick S, et al. Truth-telling in discussing prognosis in advanced life-limiting illnesses: A systematic review. Palliat Med. 2007; 21(6):507-17. [DOI:10.1177/0269216307080823] [PMID]

Sisk B, Frankel R, Kodish E, Harry Isaacson J. The truth about truth-telling in American medicine: A brief history. Perm J. 2016 20(3):15-219. [DOI:10.7812/TPP/15-219] [PMID] [PMCID]

Zahedi F. The challenge of truth telling across cultures: A case study. J Med Ethics Hist Med. 2011; 4:11. [PMID] [PMCID]

Bou Khalil R. Attitudes, beliefs and perceptions regarding truth disclosure of cancer-related information in the Middle East: A review. Palliat Support Care. 2013; 11(1):69-78. [DOI:10.1017/S1478951512000107] [PMID]

Kazdaglis GA, Arnaoutoglou C, Karypidis D, Memekidou G, Spanos G, Papadopoulos O. Disclosing the truth to terminal cancer patients: A discussion of ethical and cultural issues. East Mediterr Health J. 2010; 16(4):442-7. [DOI:10.26719/2010.16.4.442] [PMID]

Managheb SE, Hosseinpour M, Mehrabi F. Patient’s viewpoints about how to break bad news. Iran J Microbiol. 2013; 6(4):68-79. http://ijme.tums.ac.ir/article-1-5184-en.html

Sheu SJ, Huang SH, Tang FI, Huang SL. Ethical decision making on truth telling in terminal cancer: Medical students' choices between patient autonomy and family paternalism. Med Educ. 2006; 40(6):590-8. [DOI:10.1111/j.1365-2929.2006.02477.x] [PMID]

Hagerty RG, Butow PN, Ellis PM, Lobb EA, Pendlebury SC, Leighl N, et al. Communicating with realism and hope: incurable cancer patients' views on the disclosure of prognosis. J Clin Oncol. 2005; 23(6):1278-88. [DOI:10.1200/JCO.2005.11.138] [PMID]

Yun YH, Kwon YC, Lee MK, Lee WJ, Jung KH, Do YR, et al. Experiences and attitudes of patients with terminal cancer and their family caregivers toward the disclosure of terminal illness. J Clin Oncol. 2010; 28(11):1950-7. [DOI:10.1200/JCO.2009.22.9658] [PMID]

Wang DC, Peng X, Guo CB, Su YJ. When clinicians telling the truth is de facto discouraged, what is the family's attitude towards disclosing to a relative their cancer diagnosis? Support Care Cancer. 2013; 21(4):1089-95. [DOI:10.1007/s00520-012-1629-y] [PMID]

Beqiri A, Toci E, Sallaku A, Qirjako G, Burazeri G. Breaking bad news in a Southeast European population: A survey among cancer patients in Albania. J Palliat Med. 2012; 15(10):1100-5. [DOI:10.1089/jpm.2012.0068] [PMID]

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