The Effect of Family Empowerment Model on Quality of Life in Children with Epilepsy in South of Iran, 2018: A Randomized Controlled Clinical Trial
Iranian Journal of Child Neurology,
Vol. 15 No. 4 (2021),
1 October 2021
https://doi.org/10.22037/ijcn.v15i4.30119
Abstract
Abstract
Objectives:Epilepsy is a chronic disease of the nervous system that significantly affects the performance and behavior of children. Epileptic children are at greater risk of cognitive and behavioral disorders than healthy children. Various factors associated with this disease affect the patients’ family.
Materials & Methods:The present study is a randomized controlled clinical trial conducted to evaluate the effect of family empowerment on quality of life of epileptic children referred to the desired centers (Bessat Clinic affiliated to Kerman University of Medical Sciences and Imam Reza Clinic of Shiraz) in two experimental and control groups. 80 parents of these children were selected and studied, if they met the inclusion criteria of study. In this study, Quality of Life in Childhood Epilepsy Questionnaire (QOLCE) was used. It is completed by parents of these children.
Results:The age of the studied children was 4 to 8 yrs. According to these results, there was a statistically significant difference between the two groups in the level of changes in all dimensions, so that the mean score of quality of life in different factors increased in the experimental group compared to the control group (P <0.05 in all dimensions).
Conclusion:Implementing the family-centered care plan by care providers, based on patient-family support relationships, identifying their strengths and weaknesses, prioritizing the services provided, and an effective interaction with the health team increase the family and staff satisfaction, reduce the costs, and improve the outcome of the disease.
- Child, Epilepsy, Family, Empowerment, Quality of Life, Iran
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References
References
Soltanifar A, Salimi Z, Soltanifar A, Norbakhsh G, Azghandi M. Depression and anxiety in children with epilepsy: a case-control study. Journal of Fundamentals of Mental Health. 2018;21(1):73-80.
Fisher RS, Acevedo C, Arzimanoglou A, Bogacz A, Cross JH, Elger CE, et al. ILAE official report: a practical clinical definition of epilepsy. Epilepsia. 2014;55(4):475-82.
Saket K, Feyzabadi Z, Khodabakhsh M, Hamedi S. Comparing epilepsy treatment in Iranian traditional medicine and modern medicine. Journal of Medical History. 2017;30(1):27-53.
Momen AA, Ahmadi F, Malekian A, Davoodzadeh H, Kabirinia H. Evaluation of Hospitalized Intractable Epileptic Children with SPECT Scan in Ahvaz, South West of Iran. Journal of clinical and diagnostic research: JCDR. 2016;10(10):SM01.
Berg AT, Baca CB, Loddenkemper T, Vickrey BG, Dlugos D. Priorities in pediatric epilepsy research: improving children's futures today. Neurology. 2013;81(13):1166-75.
Glauser T, Shinnar S, Gloss D, Alldredge B, Arya R, Bainbridge J, et al. Evidence-based guideline: treatment of convulsive status epilepticus in children and adults: report of the Guideline Committee of the American Epilepsy Society. Epilepsy currents. 2016;16(1):48-61.
Akhondian J, Jaafari V. Topiramate in the treatment of childhood epilepsy. Medical Journal of mashhad University of Medical sciences. 2007;50(96):143-8.
Bagjani J, Mohammad nejad E, Mohajer T, Nourian M, Nasiri oskoee N. Views of parents of hospitalized children about the importance of family-centered care principles. Journal of Health Care. 2011;13(4):52-9.
Zakerimoghadam M, Ghiasvandian S, Salahshoor P. The effect of supportive nursing program on depression, anxiety and stress of family members of patients during coronary artery bypass graft (CABG) surgery. Iranian Journal of Cardiovascular Nursing. 2014;3(1):50-8.
Rostami F, Hassan STS, Yaghmai F, Ismaeil SB, BinSuandi T. The effect of educational intervention on nurses’ attitudes toward the importance of family-centered care in pediatric wards in Iran. Electronic physician. 2015;7(5):1261.
Farnia F, Fooladi L, Nasiriani K, Lotfi M. Effectivness of family-centered care on family saticfaction in intensive care unit. Hakim Journal of Health Care. 2014;4(67):306-12.
Dalvand H, Rassafiani M, Bagheri H. Family Centered Approach: A literature the review. Journal of Modern Rehabilitation. 2014;8(1):1-9.
Zeinali J, Mirhaghjou SN, Mirzaei M, Alhani F, Kazem Nezhad Leili E, Dehghani M. The effect of family centered care on meeting parental information needs of hospitalized children. Journal of Holistic Nursing And Midwifery. 2012;22(1):30-7.
Vahedian Azimi A, Alhani F, Ahmadi F, Kazemnejad A. Effect of family-centered empowerment model on the life style of myocardial infarction patients. Iran J Crit Care Nurs. 2010;2(4):1-2.
Mahmoudi G, Amiri M, Gahani MA, Haji baklou E. The study of mental health status and quality of life of addicts referring to methadone treatment centers in Sari city in 2012. Healthcare Management. 2011;3(4):8-17.
Moriguchi E, Ito M, Nagai T. Verification of the reliability and validity of a Japanese version of the Quality of Life in Childhood Epilepsy Questionnaire (QOLCE-J). Brain and Development. 2015;37(10):933-42.
Tol A, Tavasoli E, Shariferad GR, Shojaezadeh D. The relation between health-promoting lifestyle and quality of life in undergraduate students at school of health. Isfahan University of Medical Sciences. 2011.
Teymouri F, Alhani F, Kazemnejad A. The effect of family-centered empowerment model on the Quality of life of school-age asthma children. 2011.
Goodwin SW, Lambrinos AI, Ferro MA, Sabaz M, Speechley KN. Development and assessment of a shortened Quality of Life in Childhood Epilepsy Questionnaire (QOLCE‐55). Epilepsia. 2015;56(6):864-72.
Bunge EM, Essink-Bot ML, Kobussen MP, van Suijlekom-Smit LW, Moll HA, Raat H. Reliability and validity of health status measurement by the TAPQOL. Archives of disease in childhood. 2005;90(4):351-8.
Novriska D, Sutomo R, Setyati A. Behavioral problems in children with epilepsy. Paediatrica Indonesiana. 2014;54(6):324-9.
Moore M, Robinson G, Mink R, Hudson K, Dotolo D, Gooding T, et al. Developing a family-centered care model for critical care after pediatric traumatic brain injury. Pediatric critical care medicine: a journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies. 2015;16(8):758.
Nouhi E, Karbalaizadeh M, Abazari F. The effect of mothers' participation and the family-centered care on mother's anxiety with children suffering from gastrointestinal infections: a randomized clinical trial. Journal of Clinical Nursing and Midwifery. 2015;3.
Minooei MS, Ghazavi Z, Abdeyazdan Z, Gheissari A, Hemati Z. The effect of the family empowerment model on quality of life in children with chronic renal failure: Children’s and parents’ views. Nephro-urology monthly. 2016;8(4).
Zare N, Ravanipu M, Bahreini M, Motamed N, Nemati H. The effect of self-management empowering model on spiritual health of mothers of children with cerebral palsy. Iranian Journal of Pediatric nursing. 2016;3(1):45-52.
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