Iranian Journal of Child Neurology

Abstract

Objectives: Caregivers of children with cerebral palsy have to spend a long time to take care of their child. Also taking care of these children is a source of stress for their caregivers. Dealing with stressful situations has a negative impact on the quality of life of caregivers. The aim of the study was to develop a user-friendly web-based intervention for training parents of children with CP and evaluate the process of development using modified CeHRes road map.

Materials and Method: The study was conducted in four main steps including determine the needs of users, content development, design, operational development and evaluation.

Results: The website for caregiver training provided nine general topics and had the possibility that the caregivers could determine their educational priorities. Also, the users can share their experiences with other users and can ask questions from an expert. 10 caregivers completed a usability questionnaire after four weeks use. The average score of 70.5 out of 100 was shown among caregivers. The average score of all statements were above three on a Likert scale between 1 and 5.

Conclusion: The website has the possibilities including registering caregivers of children with CP, the possibility to confirm registration with an SMS and the possibility to determine the caregiver educational priorities. It has the usability for training caregivers of children with CP.

Keywords: Web-based intervention, cerebral palsy, caregiver