Negotiating Rules and Interpretations in the Field of Healthcare Rights Negotiating Rules and Interpretations in the Field of Healthcare Rights
Bioethics and Health Law Journal (BHL),
Vol. 2 No. 1 (2022),
22 Khordad 2022
,
Page 1-14 (e1)
https://doi.org/10.22037/bhl.v2i.21297
Abstract
Background and Aim: The article argues for more active participation of ethnocultural minorities in healthcare decisions and highlights the relevance of strategies aimed at creating a bottom-up engagement of people and groups, as well as of measures aimed at broader organizational flexibility, in order to meet migrants' and minorities' needs.
Methods: The current study aimed at casting light on negotiating rules and interpretations in the field of healthcare rights and its scope using primary and authentic sources on law and rights and seeking the related keywords in these sources.
Ethical Considerations: The principles of research ethics have been observed in studies and citing the primary texts and sources.
Results: Finally, the article clarifies that these strategies are not simply the outcome of a welcoming attitude of the Western healthcare system.
Conclusion: but may be interpreted as a specific duty resulting from the notion of 'particularly vulnerable groups', as formulated by the ECtHR in its case law: when vulnerable groups are at stake, every decision about state actions and rules regarding healthcare should start from an aprioristic favor towards the needs of vulnerable minority groups.
*Corresponding Author: Fabio Macioce; Email: f.macioce@lumsa.it; ORCID: https://orcid.org/0000-0003-3638-001X
Please cite this article as: Macioce F. Negotiating Rules and Interpretations in the Field of Healthcare Rights. Bioeth Health Law J. 2022; 2(1):1-14 (e1). http://doi.org/10.22037/bhl.v1i.21297
- Right to health
- minorities
- ethno-cultural groups
- vulnerable groups
- asymmetrical balance.
How to Cite
References
Gadamer, H-G. The Enigma of Health, Stanford: Stanford University Press; 1996.
Lawn JE, Rohde J, Rifkin S, Were M, Paul VK, Chopra M. Alma-Ata 30 years on: revolutionary, relevant, and time to revitalise. The Lancet. 2008 Sep 13;372(9642):917-27.
Bhopal RS. Migration, ethnicity, race, and health in multicultural societies. Oxford University Press; 2014.
Florin D, Dixon J. Public involvement in health care. Bmj. 2004 Jan 15;328(7432):159-61.
Williamson L. Patient and citizen participation in health: the need for improved ethical support. The American Journal of Bioethics. 2014 Jun 3;14(6):4-16.
Charles C, DeMaio S. Lay participation in health care decision making: a conceptual framework. Journal of health politics, policy and law. 1993;18(4):881-904.
Preece JJ. National minorities and the European nation-states system. Oxford University Press; 1998.
Jackson-Preece J. Beyond the (non) definition of minority. European Centre for Minority Issues (ECMI) Brief# 30. 2014, http://www.ecmi.de/uploads/tx_lfpubdb/Brief_30.pdf, accessed on May 2017.
Capotorti F. Study on the Rights of Persons Belonging to Ethnic, Religious and Linguistic Minorities: New York: United Nations. E/CN4/Sub2/384/Rev. 1979;1.
Green L. Internal minorities and their rights. In Group Rights, edited by J. Baker, Toronto, ON: University of Toronto Press. 1994
Eisenberg AI, Spinner-Halev J. Minorities within minorities: Equality, rights and diversity. Cambridge University Press; 2005 Jan 3.
Montesi L, Caletti MT, Marchesini G. Diabetes in migrants and ethnic minorities in a changing world. World journal of diabetes. 2016 Feb 2;7(3):34.
Vandenheede H, Deboosere P, Stirbu I, Agyemang CO, Harding S, Juel K, Rafnsson SB, Regidor E, Rey G, Rosato M, Mackenbach JP. Migrant mortality from diabetes mellitus across Europe: the importance of socio-economic change. European journal of epidemiology. 2012 Feb;27(2):109-17.
Schouten BC, Meeuwesen L. Cultural differences in medical communication: a review of the literature. Patient education and counseling. 2006 Dec 1;64(1-3):21-34.
Meeuwesen L, Harmsen JA, Bernsen RM, Bruijnzeels MA. Do Dutch doctors communicate differently with immigrant patients than with Dutch patients?. Social science & medicine. 2006 Nov 1;63(9):2407-17.
Ruijs WL, Hautvast JL, van Ansem WJ, Akkermans RP, van’t Spijker K, Hulscher ME, van der Velden K. Measuring vaccination coverage in a hard to reach minority. The European Journal of Public Health. 2012 Jun 1;22(3):359-64.
Davidson E, Liu JJ, Sheikh A. The impact of ethnicity on asthma care. Primary Care Respiratory Journal. 2010 Sep;19(3):202-8.
Knifton L. Understanding and addressing the stigma of mental illness with ethnic minority communities. Health Sociology Review. 2012 Sep 1;21(3):287-98.
Myers, F., McCollam, A., & Woodhouse, A. Equal minds: Addressing mental health inequalities in Scotland. Edinburgh, Scotland: Scottish Executive. 2005
Fernando, S. Cultural diversity, mental health and psychiatry. The struggle against racism. Hove, England: Brunner-Routledge. 2003.
Faden, RR. and TL. Beauchamp. A History and Theory of Informed Consent. New York: Oxford University Press. 1986.
Matthew DB. Race, religion, and informed consent—Lessons from social science. Journal of Law, Medicine & Ethics. 2008;36(1):150-73.
Dein S, Bhui K. Issues concerning informed consent for medical research among non-westernized ethnic minority patients in the UK. Journal of the Royal Society of Medicine. 2005 Aug;98(8):354-6.
Blackhall LJ, Murphy ST, Frank G, Michel V, Azen S. Ethnicity and attitudes toward patient autonomy. Jama. 1995 Sep 13;274(10):820-5.
Bonder B, Bonder BR, Martin L, Miracle AW. Culture in clinical care. Slack Incorporated; 2002.
Marshall P, Koenig B. Accounting for culture in a globalized bioethics. Journal of Law, Medicine & Ethics. 2004;32(2):252-66.
Rochelle TL, Marks DF. Health behaviors and use of traditional Chinese medicine among the British Chinese. Journal of Cross-Cultural Psychology. 2011 Apr;42(3):390-405.
Lai D, Chappell N. Use of traditional Chinese medicine by older Chinese immigrants in Canada. Family Practice. 2007 Feb 1;24(1):56-64.
Long J, Byrne P, Gabbay M, Frith L, Fletcher I. The dragon and the snake: health practices among Chinese in the UK from an inter-disciplinary perspective. Ethnicity & health. 2015 Mar 4;20(2):107-28.
Bradby H. Describing ethnicity in health research. Ethnicity and Health. 2003 Feb 1;8(1):5-13.
Green G, Bradby H, Chan A, Lee M. “We are not completely Westernised”: dual medical systems and pathways to health care among Chinese migrant women in England. Social science & medicine. 2006 Mar 1;62(6):1498-509.
Campani, G. Minorities formation in Italy. In Blaschke, J.(edited by), Institutional Pre-requisites for Cultural Minorities in Nation States, 2005; Parabolis, Berlin, 143-300.
Pieroni A, Quave CL. Traditional pharmacopoeias and medicines among Albanians and Italians in southern Italy: a comparison. Journal of Ethnopharmacology. 2005 Oct 3;101(1-3):258-70.
Pieroni A. Wild food plants and Arbëresh women in Lucania, Southern Italy. Women and Plants Case Studies on Gender Relations in Biodiversity Management and Conservation. 2003:66-82.
Malloy TH. National minorities between protection and empowerment: Towards a theory of empowerment. JEMIE. 2014;13:11.
Sadan E. Empowerment and community practice: Theory and practice of people-focused social solutions. Edited by Richard Flantz. Tel Aviv: Hakibbutz: Hameuchad Publishers. Mpow. org. 2004.
Malloy, T. Beyond the Limits of Multiculturalism: The Role of Europe’s Traditional Minorities. ECMI Issue Brief #28. 2013.
Dourlen-Rollier, AM. ‘La vasectomie: liberalisation en Italie, immobilisme en France.’ In Fertilité, Contraception, Sexualité. 1988; 16 (3): 252-254.
Schroeder, A. Rethinking Health: Health or Healthier Than. The British Journal for the Philosophy of Science, 2013; 64: 151–159.
Nordenfelt, L. On the Nature of Health: An Action-Theoretic Perspective, 2nd edition, Dordrecht: Kluwer. 1995.
Whitbeck, C. A Theory of Health. In A. L. Caplan and H. T. Engelhardt, Jr. (eds.), Concepts of Health and Disease: Interdisciplinary Perspectives, Reading, MA: Addison-Wesley. 1981; pp. 611-626.
Maclean, A. Autonomy, informed consent and medical law: A relational challenge (1st ed.). Cambridge: Cambridge University Press. 2009.
Stanton-Jean, M. and Doucet,H., Leroux,T. Informed consent. In H. ten Have & B. Gordijn (Edited by), Handbook of global bioethics. Berlin/Heidelberg: Springer, 2014; pp. 737–753.
Woolley S. Children of Jehovah’s Witnesses and adolescent Jehovah’s Witnesses: what are their rights?. Archives of disease in childhood. 2005 Jul 1;90(7):715-9.
Bishoff, A. Caring for Migrants and Minority Patients in European Hospitals. A review of effective interventions, SFM Studies 43, Neuchatel-Basel. 2006.
Cioffi RJ. Communicating with culturally and linguistically diverse patients in an acute care setting: nurses’ experiences. International journal of nursing studies. 2003 Mar 1;40(3):299-306.
Viruell-Fuentes EA. Beyond acculturation: immigration, discrimination, and health research among Mexicans in the United States. Social science & medicine. 2007 Oct 1;65(7):1524-35.
Osipov A. Non-territorial autonomy as a way to frame diversity policies: The case of Russia. The challenge of non-territorial autonomy: Theory and practice. 2013:133-48.
Brubaker, R. Ethnicity without groups, Archive Europenne de Sociologie, 2002; 63 (2): 163-89.
Yehya NA, Dutta MJ. Health, religion, and meaning: A culture-centered study of Druze women. Qualitative Health Research. 2010 Jun;20(6):845-58.
Basu A, Dutta MJ. Centralizing context and culture in the co-construction of health: Localizing and vocalizing health meanings in rural India. Health communication. 2007 May 22;21(2):187-96.
Dutta, M. Communicating health: A culture-centered approach. London: Polity Press. 2008.
Shachar, A. Multicultural Jurisdictions. Cultural Differences and Women’s Rights. Cambridge: Cambridge University Press. 2001.
Priebe S, Sandhu S, Dias S, Gaddini A, Greacen T, Ioannidis E, Kluge U, Krasnik A, Lamkaddem M, Lorant V, Riera RP. Good practice in health care for migrants: views and experiences of care professionals in 16 European countries. BMC public health. 2011 Dec;11(1):1-2.
Mladovsky P. Migrant health in the EU. EUROHEALTH-LONDON-. 2007;13(1):9.
Lorant V, Bhopal R. Comparing policies to tackle ethnic inequalities in health: Belgium 1 Scotland 4. European Journal of Public Health. 2011 Apr 1;21(2):235-40.
Dubler NN, Liebman CB. Bioethics mediation: A guide to shaping shared solutions. Vanderbilt University Press; 2011 Jun 6.
Ruijs H, Hautvast J, van der Velden K, Hulscher M. How to reach minority groups with low MMR vaccination coverage? Helma Ruijs. The European Journal of Public Health. 2013 Oct 1;23(suppl_1):ckt126-123.
Naish J, Brown J, Denton B. Intercultural consultations: investigation of factors that deter non-English speaking women from attending their general practitioners for cervical screening. BMJ: British Medical Journal. 1994 Oct 10;309(6962):1126.
Weber BE, Reilly BM. Enhancing mammography use in the inner city: a randomized trial of intensive case management. Archives of internal medicine. 1997 Nov 10;157(20):2345-9.
Luzi, A.M. et al. L'accesso alle cure della persona straniera: indicazioni operative [Access to healthcare services for immigrants], Note Istituto Superiore di Sanità. 2013; 26 (3 Suppl. 1): 3-58.
Italian Bioethics Committee, Bioethical issues in a multi-ethnic society (1998), http://bioetica.governo.it/en/icb-work/documents-opinions-responses-and-motions/, accessed on May 2017.
Festini F, Focardi S, Bisogni S, Mannini C, Neri S. Providing transcultural to children and parents: an exploratory study from Italy. Journal of Nursing Scholarship. 2009 Jun;41(2):220-7.
Leoni, G. Società multietnica e multiculturalismi: L’ infermiere e il nursing transculturale [Multiethnic society and multiculturalisms: The nurse and transcultural nursing]. Tempo di Nursing, 2004; 41: 9–14.
Peroni L, Timmer A. Vulnerable groups: The promise of an emerging concept in European Human Rights Convention law. International Journal of Constitutional Law. 2013 Oct 1;11(4):1056-85.
Shachar, A. Demistifying Culture, International Journal of Constitutional Law, 2012; 10: 429-448.
Macioce F. Undocumented migrants, vulnerability and strategies of inclusion: A philosophical perspective. Constellations. 2018 Mar;25(1):87-100.
Torbisco-Casals N. Multiculturalism, identity claims, and human rights: From politics to courts. The Law & Ethics of Human Rights. 2016 Nov 1;10(2):367-404.
- Abstract Viewed: 209 times
- PDF Downloaded: 119 times