Determining Self-Efficacy and Its Related Factors in Adolescents with Major β-Thalassemia Referring to Selected Hospital in Tehran
Advances in Nursing & Midwifery,
Vol. 31 No. 4 (2022),
15 October 2022
Introduction: Major β-Thalassemia is one of the most common hereditary anemias in the world and is a health problem associated with the absence or reduction of globin chain production. Self-efficacy helps adolescents with chronic illness to strength their ability to handle the routine tasks and to achieve treatment goals. Because of the importance Major β-Thalassemia in adolescents and its effects on their quality of life, we decided to do this study with the aim of “Determining self-efficacy and its related factors in adolescents Major β-Thalassemia referring to selected hospital in Tehran”.
Methods: The present study used a descriptive comparative cross-sectional design on 100 adolescents with Major β-Thalassemia referring to Shohadaye Tajrish hospital in Tehran in 2022. We used a census design to collect data in a fixed duration and in three work shifts in the morning, evening and night in the relevant units. The data collection tools included of demographic and Self-Efficacy Questionnaire for Children (SEQ-C). The collected data were analysed by SPSS Software version 20 via statistical tests included of Pearson or Spearman coefficient, t test and ANOVA test.
Results: The average age of the participant adolescents were 15.40 ± 2.22. The results of the study showed that the mean score of academic, social and emotional self-efficacy were 26.17±3.91, 24.83±5.33 and 24.49±4.75 respectively. The score of self-efficacy of the participants were approximately in the average range in the three dimensions of the SEQ-C. However, the score of academic self-efficacy was slightly higher than the average range. There are not any significant relationships between the demographic variables and any dimensions of self-efficacy (P-value>0.05). However, the results of T-Test showed significant relationships between the social self-efficacy score and positive history of splenectomy (P-value=0.018).
Conclusions: Based on the results of the study, the self-efficacy score of participants in this study were approximately in the average range, therefore, these results showed that, health staffs such as nurses should promote the self-efficacy of adolescents with Major β-Thalassemia through health education.
- Beta Thalassemia
How to Cite
Biswas S, Nag A, Ghosh K, Ray R, Roy K, Bandyopadhyay A, et al. Genetic determinants related to pharmacological induction of foetal haemoglobin in transfusion-dependent HbE-beta thalassaemia. Ann Hematol. 2019;98(2):289-99. doi: 10.1007/s00277-018-3536-x pmid: 30413899
Grace R, Ware RE. Pediatric Hematology, An Issue of Hematology/Oncology Clinics of North America, Ebook: Elsevier Health Sciences2019.
Mevada ST, Al Saadoon M, Zachariah M, Al Rawas AH, Wali Y. Impact of Burden of Thalassemia Major on Health-related Quality of Life in Omani Children. J Pediatr Hematol Oncol. 2016;38(5):384-8. doi: 10.1097/MPH.0000000000000565 pmid: 27164523
Hadipour Dehshal M, Tabrizi Namini M, Hantoushzadeh R, Yousefi Darestani S. beta-Thalassemia in Iran: Things Everyone Needs to Know About This Disease. Hemoglobin. 2019;43(3):166-73. doi: 10.1080/03630269.2019.1628774 pmid: 31272240
Bala J, Sarin J. Empowering Parents of Children with Thalassemia. Int J Nurs Care. 2014;2(1):22-5. doi: 10.5958/j.2320-8651.2.1.005
Vidyarthi U, Kumar A. Assessment of haematological parameters in thalassemia in paediatric patients. Intern J Med and Hea Res. 2018;4(1):109-11.
Zakaria M, Hassan T. Beta Thalassemia: BoD-Books on Demand. 2020. doi: 10.5772/intechopen.78823
Abolghasemi H, Amid A, Zeinali S, Radfar MH, Eshghi P, Rahiminejad MS, et al. Thalassemia in Iran: epidemiology, prevention, and management. J Pediatr Hematol Oncol. 2007;29(4):233-8. doi: 10.1097/MPH.0b013e3180437e02 pmid: 17414565
Angastiniotis M. The adolescent thalassemic. The complicant rebel. Minerva pediatrica. 2002;54(6):511-5.
Khurana A, Katyal S, Marwaha RK. Psychosocial burden in thalassemia. Indian J Pediatr. 2006;73(10):877-80. doi: 10.1007/BF02859278 pmid: 17090897
Mikelli A, Tsiantis J. Brief report: Depressive symptoms and quality of life in adolescents with b-thalassaemia. J Adolesc. 2004;27(2):213-6. doi: 10.1016/j.adolescence.2003.11.011 pmid: 15023520
Reshadat S, Zangeneh A, Saeidi S, Izadi N, Ghasemi SR, Rajabi-Gilan N. A feasibility study of implementing the policies on increasing birth rate with an emphasis on socio-economic status: a case study of Kermanshah Metropolis, western Iran. Soc Indicat Res. 2018;140:619-36. doi: 10.1007/s11205-017-1790-2
Atkin K, Ahmad WI. Living a 'normal' life: young people coping with thalassaemia major or sickle cell disorder. Soc Sci Med. 2001;53(5):615-26. doi: 10.1016/s0277-9536(00)00364-6 pmid: 11478541
Khairkar P, Malhotra S, Marwaha R. Growing up with the families of B-thalassaemia major using an accelerated longitudinal design. Europe Psychiatr. 2011;26(S2):381. doi: 10.1016/S0924-9338(11)72089-2
Lyrakos GN, Vini D, Aslani H, Drosou-Servou M. Psychometric properties of the Specific Thalassemia Quality of Life Instrument for adults. Patient Prefer Adherence. 2012;6:477-97. doi: 10.2147/PPA.S30763 pmid: 22848151
Levine L, Levine M. Health care transition in thalassemia: pediatric to adult-oriented care. Ann N Y Acad Sci. 2010;1202:244-7. doi: 10.1111/j.1749-6632.2010.05598.x pmid: 20712800
Badawy SM, Morrone K, Thompson A, Palermo TM. Computer and mobile technology interventions to promote medication adherence and disease management in people with thalassemia. Cochrane Database Syst Rev. 2019;6(6):CD012900. doi: 10.1002/14651858.CD012900.pub2 pmid: 31250923
Borimnejad L, Parvizy S, Haghaani H, Sheibani B. The effect of family-centered empowerment program on self-efficacy of adolescents with thalassemia major: A randomized controlled clinical trial. Int J Communit Nurs Midwife. 2018;6(1):29.
Baghersalimi A, Darbandi B, Kazemnezhad Leyli E, Kamran Mavardiani Z, Ahmad Sharbafi M, Rezasefat Balesbaneh A. Evaluation of Self-efficacy in Children and Adolescents With Thalassemia Major. J Pediatr Hematol Oncol. 2021;43(6):e754-e8. doi: 10.1097/MPH.0000000000002219 pmid: 34133385
Platania S, Gruttadauria S, Citelli G, Giambrone L, Di Nuovo S. Associations of Thalassemia Major and satisfaction with quality of life: The mediating effect of social support. Health Psychol Open. 2017;4(2):2055102917742054. doi: 10.1177/2055102917742054 pmid: 29379628
Razzazan N, Ravanipour M, Gharibi T, Motamed N, Zarei A. Effect of self-management empowering model on the quality of life in adolescents and youths with major thalassemia. J Nurs Educat. 2014;3(2):48-59. doi: 10.17795/jjcdc-23366
Bravo L, Killela MK, Reyes BL, Santos KMB, Torres V, Huang CC, et al. Self-Management, Self-Efficacy, and Health-Related Quality of Life in Children With Chronic Illness and Medical Complexity. J Pediatr Health Care. 2020;34(4):304-14. doi: 10.1016/j.pedhc.2019.11.009 pmid: 32107073
Bandura A. Reflections on self-efficacy. Advance Behav Res Therap. 1978;1(4):237-69. doi: 10.1016/0146-6402(78)90012-7
Xiao X, Chen C, Gao C, Wang H, Reynolds NR. Ways of coping mediate the relationship between self-efficacy for managing HIV and acceptance of illness among people living with HIV. J Adv Nurs. 2020;76(11):2945-54. doi: 10.1111/jan.14488 pmid: 32893375
Sridan W, Jintrawet U, Niyomkar S. Learning self-efficacy, social support, and self-management in Syrian adolescents. Nurs J. 2011;48(4):132-45.
Haghani H, Borimnejad L. The self-efficacy of adolescents with major thalassemia and its influencing factors in Bandar Abbas. J Pediatr Nurs. 2015;1(3):26-33.
Zamanzadeh V, Valizadeh L, Ghahramanian A, Narenjbaghi SH. Personal social factors influential on the self-efficacy of the patients with thalassemia: A qualitative study. J Nurs Midwife Sci. 2021;8(2):120. doi: 10.4103/JNMS.JNMS_124_20
Gray JR, Grove SK, Sutherland S. Burns and grove's the practice of nursing research-E-book: Appraisal, synthesis, and generation of evidence: Elsevier Health Sciences2016.
Woo K. Polit & Beck Canadian essentials of nursing research: Lippincott Williams & Wilkins2017.
Muris P. A brief questionnaire for measuring self-efficacy in youths. J Psychopathol Behav Assess. 2001;23(3):145-9. doi: 10.1023/A:1010961119608
Tahmassian K. Validation and standardization of Persian version of self-efficacy questionnaire children. J Appl Psychol. 2007;1(4):5.
Keller G. Statistics for management and economics, abbreviated: Cengage Learning2015.
Levin RI. Statistics for management: Pearson Education India2011.
Behnam Vashani H, Hekmati Pour N, Vaghee S, Asghari Nekah S. Effect of Storytelling on Self-Efficacy in Children with Thalassemia: Application of Bandura's Social Cognitive Theory. J Health Care. 2015;17(3):230-9.
Tarakmeh T, Alaee Karahroudy F, Mamiyanloo yangejeh H, Ghasemi E. Evaluation of the Effect of Self-care Education on the Self-efficacy of Adolescents with Thalassemia Major. Sci J Nurs Midwife Paramedical Facult. 2018;4(2):59-70.
Hekmatipour N, Vaghee S, Asghari Nekah SM. Effects of storytelling on educational self-efficacy in children with thalassemia, aged 7-12 Years old. Evidence Based Care. 2015;5(3):19-28.
Borimnejad LP, Parvizy SP, Haghaani HP, Sheibani BM. The Effect of Family-Centered Empowerment Program on Self-Efficacy of Adolescents with Thalassemia Major: A Randomized Controlled Clinical Trial. Int J Communit Nurs Midwife. 2018;6(1):29-38.
Farley H. Promoting self-efficacy in patients with chronic disease beyond traditional education: A literature review. Nurs Open. 2020;7(1):30-41. doi: 10.1002/nop2.382 pmid: 31871689
Selzler AM, Habash R, Robson L, Lenton E, Goldstein R, Brooks D. Self-efficacy and health-related quality of life in chronic obstructive pulmonary disease: A meta-analysis. 10.1016/j.pec.2019.12.003 pmid: 31859120
Bourne MJ, Smeltzer SC, Kelly MM. Clinical teacher self-efficacy: A concept analysis. Nurse Educ Pract. 2021;52:103029. doi: 10.1016/j.nepr.2021.103029 pmid: 33780834
Mickley KL, Burkhart PV, Sigler AN. Promoting normal development and self-efficacy in school-age children managing chronic conditions. Nurs Clin North Am. 2013;48(2):319-28. doi: 10.1016/j.cnur.2013.01.009 pmid: 23659816
Mohammadi Z. The level of loneliness, hopelessness and self-esteem in major thalassemia adolescents. Sci J Iran Blood Transfus Organ. 2012;9(1):36-43.
Albion MJ, Fernie KM, Burton LJ. Individual differences in age and self‐efficacy in the unemployed. Australia J Psychol. 2005;57(1):11-9. doi: 10.1080/00049530412331283417
Chyung SYY. Age and gender differences in online behavior, self-efficacy, and academic performance. Quarter Rev Distance Educat. 2007;8(3):213.
- Abstract Viewed: 63 times
- pdf Downloaded: 50 times