Translation and Psychometric properties of Persian Version of “Kendall Chronic Sorrow Instrument” in Mothers of Children with Cancer
Supportive & Palliative Care in Cancer,
Vol. 1 No. 1 (2017),
https://doi.org/10.22037/spc.v1i1.10563
Abstract
Objectives:
The aim of this study was to translate and evaluate psychometric properties of Kendall chronic sorrow instrument (KCSI) in Iranian mothers of children with cancer.
Methods:
In this methodological study, Kendall chronic sorrow instrument (KCSI) was translated and back translated. Its content and face validity were determined by 15 faculty members specialized in different fields of nursing and psychology. Among mothers of children with cancer, 264 mothers were selected by convenient sampling and completed Persian instrument. Construct validity and internal consistency reliability were investigated by exploratory factor analysis and determining Cronbach's alpha. To determine stability, test-retest method was used for 20 participants with a two-week interval.
Results:
Factor analysis confirmed the presence of three factors that explained 49.92% of instrument variance. Cronbach's alpha for the total instrument (α=0.84) indicated its internal consistency. Pearson correlation coefficient r=0.86 (p<0.001) confirmed the stability of the instrument. Chronic sorrow mean score of participants in this study was 76.39 (SD=15.81).
Conclusion:
Persian version of Kendall chronic sorrow instrument (KCSI) can be used as a valid and reliable instrument to measure chronic sorrow in mothers of children with cancer.
How to Cite This Article: Nifarid L, Rassouli M, Borimnejad L, Alavimajd H. Translation and Psychometric properties of Persian Version of “Kendall Chronic Sorrow Instrument” in Mothers of Children with Cancer. Supportive and Palliative Care in Cancer 2016; in press.
- Neoplasms
- Child
- Mothers
- Psychometrics
- Grief
How to Cite
References
Northington L. Chronic sorrow in caregivers of school age children with sickle cell disease: a grounded theory approach. Issues Compr Pediatr Nurs. 2000;23(3):141-54. PMID: 11310234
Eakes GG, Burke ML, Hainsworth MA. Middle-range theory of chronic sorrow. Image J Nurs Sch. 1998;30(2):179-84. PMID: 9775562
Burke ML, Eakes GG, Hainsworth MA. Milestones of Chronic Sorrow: Perspectives of Chronically III and Bereaved Persons and Family Caregivers. J Fam Nurs. 1999;5(4):374-87. DOI: 10.1177/107484079900500402
Hobdell EF, Grant ML, Valencia I, Mare J, Kothare SV, Legido A, et al. Chronic sorrow and coping in families of children with epilepsy. J Neurosci Nurs. 2007;39(2):76-82. DOI: 10.1177/107484079900500402 PMID: 17477221
Liedstrom E, Isaksson AK, Ahlstrom G. Chronic sorrow in next of kin of patients with multiple sclerosis. J Neurosci Nurs. 2008;40(5):304-11. PMID: 18856252
Masterson M. Chronic Sorrow in Mothers of Adult Children with Cerebral Palsy: An Exploratory Study. Kansas, USA Kansas State University, 2010.
Lindgren CL, Burke ML, Hainsworth MA, Eakes GG. Chronic sorrow: a lifespan concept. Sch Inq Nurs Pract. 1992;6(1):27-40; discussion 1-2. PMID: 1585085
Eakes GG. Chronic sorrow: a response to living with cancer. Oncol Nurs Forum. 1993;20(9):1327-34. PMID: 8265437
Mousavi SM, Gouya MM, Ramazani R, Davanlou M, Hajsadeghi N, Seddighi Z. Cancer incidence and mortality in Iran. Ann Oncol. 2009;20(3):556-63. DOI: 10.1093/annonc/mdn642 PMID: 19073863
Day SW, Segovia L, Viveros P, Alqudimat MR, Rivera GK. The Latin American Center for Pediatric Oncology Nursing Education: development, implementation, and accomplishments. Cancer Nurs. 2013;36(5):340-5. DOI: 10.1097/NCC.0b013e318292f0dd PMID: 23666268
Woodgate RL. Life is never the same: childhood cancer narratives. Eur J Cancer Care (Engl). 2006;15(1):8-18. DOI: 10.1111/j.1365-2354.2005.00614.x PMID: 16441672
Eiser C, Absolom K, Greenfield D, Snowden J, Coleman R, Hancock B, et al. Follow-up care for young adult survivors of cancer: lessons from pediatrics. J Cancer Surviv. 2007;1(1):75-86. DOI: 10.1007/s11764-007-0006-1 PMID: 18648947
Holm KE, Patterson JM, Gurney JG. Parental involvement and family-centered care in the diagnostic and treatment phases of childhood cancer: results from a qualitative study. J Pediatr Oncol Nurs. 2003;20(6):301-13. DOI: 10.1177/1043454203254984 PMID: 14738162
Scornaienchi JM. Chronic sorrow: one mother's experience with two children with lissencephaly. J Pediatr Health Care. 2003;17(6):290-4. PMID: 14610442
Hobdell E. Chronic sorrow and depression in parents of children with neural tube defects. J Neurosci Nurs. 2004;36(2):82-8, 94. PMID: 15115362
Bowes S, Lowes L, Warner J, Gregory JW. Chronic sorrow in parents of children with type 1 diabetes. J Adv Nurs. 2009;65(5):992-1000. PMID: 19399973
Monsson Y. The Effects of hope on mental health and chronic sorrow in parents of children with Autism spectrum disorder. Kansas: University of Kansas; 2010.
Kendall L. The Experience of Living with ongoing Loss: Testing the Kendall Chronic Sorrow Instrument. Virginia Virginia Commonwealth University, 2005.
Gordon J. An evidence-based approach for supporting parents experiencing chronic sorrow. Pediatr Nurs. 2009;35(2):115-9. PMID: 19472675
Gravelle AM. Caring for a child with a progressive illness during the complex chronic phase: parents' experience of facing adversity. J Adv Nurs. 1997;25(4):738-45. PMID: 9104669
Teel CS. Chronic sorrow: analysis of the concept. J Adv Nurs. 1991;16(11):1311-9. PMID: 1753027
Wild D, Grove A, Martin M, Eremenco S, McElroy S, Verjee-Lorenz A, et al. Principles of Good Practice for the Translation and Cultural Adaptation Process for Patient-Reported Outcomes (PRO) Measures: report of the ISPOR Task Force for Translation and Cultural Adaptation. Value Health. 2005;8(2):94-104. DOI: 10.1111/j.1524-4733.2005.04054.x PMID: 15804318
Dempsey PA, Dempsey AD. Using Nursing Research: Process, Critical Evaluation and Utilization. Michigan: Lippincott; 2000.
Osborne J, Costello A. Best practices in exploratory factor analysis: Four recommendations for getting the most from your analysis. Pan-Pacific Manag Rev. 2009;12(2):131-46.
Lobiondo-Wood G, Haber J. Nursing Research: Methods and Critical Appraisal for Evidence-Based Practice. 6th ed. St. Louis: Mosby/Elsevier; 2006.
Mikhaeli F. Internal consistency and confirmatory factor analysis of Wells and Davis Thought control questionnaire. Iran J Psychol Clin Psychol. 2011;16:467-78.
Ross J. Where they danced: patrons, institutions, spaces: Institutional forces and the shaping of dance in the American university. Dance Chronicle. 2002;25(1):115-24. DOI: 10.1081/dnc-120003122
Hainsworth MA, Eakes GG, Burke ML. Coping with chronic sorrow. Issues Ment Health Nurs. 1994;15(1):59-66. PMID: 8119797
Chimarusti J. Chronic sorrow: Emotional experiences of parents with children with cerebral palsy. New Mexico: University of New Mexico; 2002.
Parish R. Mothers' experiences raising children who have multiple disabilities and their perceptions of the chronic sorrow phenomenon. United States: The University of North Carolina at Greensboro; 2010.
Kuleini M. [Al- Osol men Al-Kafi]. Tehran: Darolkotob Aleslamiyeh; 1999.
Polit D, Beck C. Nursing Research, Principles and Methods. Philadelphia: Lippincott Williams & Wilkins; 2007.
Damrosch SP, Perry LA. Self-reported adjustment, chronic sorrow, and coping of parents of children with Down syndrome. Nurs Res. 1989;38(1):25-30. PMID: 2521384
- Abstract Viewed: 1160 times
- PDF Downloaded: 762 times