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Concerns of Women of Reproductive Age with Multiple Sclerosis: A Qualitative Study

Tajdar Alizadeh, Zohreh Keshavarz, Mojgan Mirghafourvand, Farid Zayeri
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Abstract

Abstract
Introduction: Psychological disorders are the leading cause of disabilities, social
harms, and reduced quality of life in patients with Multiple Sclerosis (MS). This
qualitative study was conducted to describe the concerns of females with MS.
Methods: In this qualitative study, 16 females with MS at the reproductive age
with medical records at the MS Society of Tabriz were selected using the purposive
sampling technique and underwent semi-structured in-depth individual interviews.
All interviews were recorded, transcribed, and analyzed using conventional content
analysis.
Results: In this study, 23 codes were identified from transcribed interviews and
categorized to two sub-categories, fears and feelings. These two sub-categories formed
the main category, named concerns.
Conclusions: Regarding concerns of these patients, their regular health monitoring by
physicians and healthcare providers is recommended in an attempt to alleviate these
concerns.

Keywords

Concerns; women; multiple sclerosis; qualitative study; fears; feelings.

References

McGuire, L., Kiecolt-Glaser, J.K. Interpersonal pathways to health. Psychiatry. 2000;63(2): 136-9.

Murray JT. Multiple sclerosis the history of disease. New York: Demos medical publishing; 2005.

Mc conell E. Myths and facts. Nurs Educ. 1999;29(8):6-25.

Zwibel HL, Smrtka J. Improving quality of life in multiple sclerosis: an unmet need. Am J Manag Care. 2011 17(5): 139-45. [PubMed: 21761952]

Izadi S, Nikseresht, A, Sharifian, M, Sahraian, MA, Hamidian Jahromi A, Aghighi M, et al. Significant increase in the prevalence of Multiple Sclerosis in Iran in 2011. Iran J Med Sci. 2014;39(2):152–3. [PubMed: 24644387] PMCID: PMC3957017

Etemadifar M, Janghorbani M, Shaygannejad V, Ashtari F. Prevalence of multiple sclerosis in Isfahan, Iran. Neuroepidemiology. 2006;27:39–44. doi: 10.1159/000094235. [PubMed: 16804333]

Neri, M. Kroll, T. Understanding the consequences of access barriers to health care: experiences of adults with disabilities. Disabil Rehabil. 2003;25(2):85-96. [PubMed:12554383]

Bishop M, Frain M. Development and initial analysis of Multiple Sclerosis Self-Management Scale. Int J MS Care. 2007;9:35–42. doi.org/10.7224/1537-2073-9.2.35

Ruto C. Special Needs Populations: Care of patients with Multiple Sclerosis. AORN J. 2013;98(3): 281-93. doi.org/10.1016/j.aorn.2013.07.002.

Dennison L, Moss-Morris R, Chalder T. A review of psychological correlates of adjustment in patients with multiple sclerosis. Clin Psychol Rev. 2009;29(2):141-53. doi: 10.1016/j.cpr.2008.12.001. [PubMed:19167801]

Andrews V, Borkovec TD. The differential effects of inductions of worry, somatic anxiety, and depression on emotional experience. J Behav Ther Exp Psychiatry. 1988;19:21-26. [PubMed:3392220]

.Brosschot JF, Gerin W, Thayer JF. The perseverative cognition hypothesis: A review of worry, prolonged stress-related physiological activation, and health. J Psychosom Res 2006;60(2):113-24. doi: doi.org/10.1016/j.jpsychores.2005.06.074. [PubMed: 16439263]

Bruce, J. M. & Arnett, P. Clinical correlates of generalized worry in multiple sclerosis. J Clin Exp Neuropsycho. 2009;31(6),698–705. doi: 10.1080/13803390802484789. [PubMed: 19107677]

Iezzoni LI. Ngo L. Health, disability, and life insurance experiences of working-age persons with multiple sclerosis. Mult Scler J. 2007;13(4):534-46. doi: 10.1177/1352458506071356. [PubMed: 17463076]

Iezzoni LI, Ngo LH, Kinkel RP. Working-age persons with multiple sclerosis and access to disease-modifying medications. Mult Scler. 2008;14(1):112-22. doi: 10.1177/1352458507080466. [PubMed:17893109]

Mackereth PA, Booth K, Hillier VF, Caress A. What do people talk about during reflexology? Analysis of worries and concerns with multiple sclerosis. Complement Ther Clin Pract. 2009;15(2):85-90. doi: /10.1016/j.ctcp.2008.12.001. [PubMed: 19341986]

Buchanan R, Radin D, chakravorty BJ, Tyry T. Huang C. Perceptions of informal care givers: Health and support services provided to people with multiple sclerosis. Disabil Rehabil. 2010;32(6):500-10. doi: /10.3109/09638280903171485. [PubMed: 19852704]

Buchanan R, Huang C. Health-related quality of life among informal caregivers assisting people with multiple sclerosis. Disabil Rehabil. 2011;33(2):113-21. doi: 10.3109/09638288.2010.486467. [PubMed: 20450245]

Pfaffenberger N, Gurweniger S, Kopp M, Seeber B, Stürz K, Berger T et al. Impaired body image in patients with multiple sclerosis. Acta Neurol Scand. 2011;124(3):165-70. doi: 10.1111/j.1600-0404.2010.01460.x. [PubMed: 21198446]

Thornton EW, Tedman S, Rigby S, Bashforth H, Young C. Worries and concerns of patients with multiple sclerosis: development of an assessment scale. Mult Scler. 2006;12(2):196-203. doi: 10.1191/135248506ms1273oa. [PubMed: 16629423]

Finlayson, M. Concerns about the future among older adults with multiple sclerosis. Am J Occup The. 2004;58(1):54–63. [PubMed: 14763636]

Willson CL, Tetley J, Lloyd C, Messmer Uccelli M, MacKian S. The impact of multiple sclerosis on the identity of mothers in Italy. Disabil Rehabil. 2017;30:1-12. doi: 10.1080/09638288.2017.1300339. [PubMed: 28359178]

Ghojazadeh M, Taghizadeh M, Abdi S, Azami-Aghdash S, Andalib S, Farhoudi M. Fear of disease progression in patients with Multiple Sclerosis: Associations of anxiety, depression, quality of life, social support, MS knowledge. J Clin Res Gov. 2014;3(2):141-6. doi: 10.13183/jcrg.v312.105.

Johnson KL, Kuehn CM, Yorkston KM, Kraft GH, Klasner E, Amtmann D. Patient perspectives on Disease-Modifying Therapy in Multiple Sclerosis. Int J MS Care. 2006; 8(1):11–18. doi: org/10.7224/1537-2073-8.1.11.

Jones S, Amtmann D, Health care worry is associated with worse outcomes in Multiple Sclerosis: A brief report. Rehabil Psychol. 2014;59(3):354–9. doi: 10.1037/a0037074. PMCID: PMC4138263

Mazaheri M, Fanian N, Zargham-Boroujeni A. Experiences of patients with multiple sclerosis from group counseling. Iran J Nurs Midwifery Res. 2011;16(2):181–90. PMCID: PMC3249770

Fallahi- Khoshknab M, Ghafari S, Nourozi K, Mohammadi E. Confronting the diagnosis of multiple sclerosis: A qualitative study of patient experiences. J Nurs Res. 2014;22(4):275-82. doi:10.1097/jnr.0000000000000058. [PubMed: 25386871]

Ghafari S, Fallahi- Khoshknab M, Nourozi K, Mohammadi E. Patients’ experiences of adapting to multiple sclerosis: a qualitative study. Contemporary Nurse. 2015;50(1):36–49, doi.org/10.1080/10376178.2015.1010252. [PubMed: 26213256]

Duru Aşiret G, Ozdemir L, Maraşlıoğlu N. Hopelessness, depression andl satisfaction among patients with Multiple Sclerosis. Turk Noroloji Dergisi. 2014;20(1):1-6. doi: 10.4274/Tnd.24471. [PubMed:

Morgante L. Hope in multiple sclerosis, a nursing perspective. Int J MS Care. 2000;2(2):9-15.




DOI: https://doi.org/10.22037/anm.v27i3.18823